My last bit of ‘normal’…

My last bit of ‘normal’ was to still drink English tea. I usually drink about 5 mugs a day but I just stopped. I found it easy to just put the mug down and stop this minor addiction, this comfort zone. I’d swapped to organic English tea with hemp milk but it just had to go. My health improved within 24 hours and, besides this, a whole glass of hemp milk makes me fart. We just can’t have that.

If a person has an immune disorder then black tea is not recommended. I’ve swapped to using White Tea, Green Tea and the other odd herbal tea.

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Woke up this morning…

Woke up this morning and felt like I’d been trampled by a rugby team. I felt my left calf begin to cramp. I had two sprays of Sativex and lay there slowly stretching my legs out. Blimey, they were stiff.  Yesterday I’d been for a mile long walk without my walking sticks. I’d done a similar walk last week that put me out of any serious action for about five days. I did not want to get that fatigued again.

The weather was fabulous and, although tired and a bit dizzy, I felt I could walk to the post office and back. A mile long journey down and uphill including a few curbs to negotiate. At the start I always feel that it’s an impossible task. Can I make the distance? Past experience has taught me that after walking for two minutes my whole body becomes more comfortable with the effort. I’d just changed my diet and was fuelled by eating a cube of lard. I’d toyed with Ketosis in the past but now I’m actually making it happen. I was brimming with fat energy.

I passed by the house of another disabled person nearby who has invited my dogs in while they were straying. He secured the two of them to his fence with his belt last week. We had a sunny exchange and he informed me that he too had been told he’d never walk again. He had a brain haemorrhage and ended up with epilepsy. Now I see him walking his dog like any other person. It’s so nice to know others who are willing to fight for a brighter reality. He gave me lots of encouragement both heading down and uphill. So appreciated.

The walk downhill was easy. This was the first time I felt I could step up and down curbs without support. How odd it is to find these simple things awesome, I thought. I felt like a child learning to walk. I was so pleased by this tiny achievement. I say again, awesome! There are little dips in the path too and I handled those fine. Again, awesome!

I was really feeling the fatigue as I headed up the hill to my house. I had to stop and stand still to rest. My neighbour came past as he walked his dog. More encouragement was well received. I rested again just before the steepest part of my journey. After the final push the path flattens again so I agreed with myself that this made a fine ‘warm down’. I could feel my legs burning but knew the end was near. 

I got home and flopped in my Inada cube. My Shiatsu massage chair is essential after such a long walk. I’ve just done a small walking circuit on the flat today. Today my body needs to slow down. I exercise everyday because if I stop moving EVERYTHING follows. My body soon seizes up. I just can’t allow that and besides, the weather is so lovely today.

We are lucky our next door neighbours are ducks. It's a nice 'come down' view after big exercise.

We are lucky our next door neighbours are ducks. It’s a nice ‘come down’ view after big exercise.

A Vacation From Pain

I thought I’d be waxing lyrical about the Wahls Protocol. Don’t get me wrong as I’m as pleased as punch with the speed of my recovery. I just decided to take a definite vacation from the pain of the past few years. I’ve not wanted to discuss it. It’s easier to just get on with the exercises, stretching and meditation and just chill out in a glorious Summer.

Today has been fabulous. I’ve decided to build up certain muscle groups so I can walk without canes or crutches. I’ve been using a variety of walking routes depending on how I feel. Today I feel a little dizzy so it’s been a double walk round little retirement bungalows at the top of my drive. It’s mostly flat but there are slight gradients, dips and cambers to keep my body constantly challenged. I did two circuits and that’s about a quarter of a mile. 

If I go to the top of my drive i am presented with a perfect walking circuit.

If I go to the top of my drive i am presented with a perfect walking circuit.

As soon as I’m home I sit in my Shiatsu massage chair. I’ve found it an essential way to remove any build up of lactic acid. My legs feel light afterwards too. I use a hand held massager for those hard to reach areas like the Lumbar and Glutes.

I’ve decided to use Sativex together with the Wahls Protocol to speed my recovery. Because Sativex allows a patient to remain fairly flexible I have avoided the painful and time consuming task of electrically stimulating seized muscles. It is an effective recovery drug used more and more for post operative care and spinal injury. A guy came to fix my oven and informed me that he’d been given Sativex to recover from a Kite Surfing accident and resulting spinal surgery. He needed Sativex to help his muscles relax while essential healing took place. 

I love hearing stories of the diverse uses of Sativex. I’ve even heard of it been prescribed for those suffering from cluster headaches too. The sooner it’s allowed for use within the NHS the better. The NHS has made bad assessments based on faulty data. I hope they sort out their misunderstandings soon. There’s just too many people who need a vacation from their pain. Leaving them to suffer is nothing short of terrorism.

I Walk On Beaches

About a month ago I was able to walk on beaches with my crutches. This is all thanks to my embracing of the brilliant Wahls Protocol. When first diagnosed with MS in 2003 I was told never to use existing pharmaceutical medications and lead a clean and relaxed life instead. At the time I thought I was invincible and carried on working despite suffering harsh symptoms. Within 6 weeks I had to give up working but started to eat a healthier diet. Someone suggested I use cannabis to escape any painful symptoms. It worked wonders. Sativex in those days was virtually non existent.

I receive a Sativex prescription now and I am so grateful for it. Without it I would be in agony and there would be little point in living. Despite it’s brilliance, Sativex did not stop the MS from increasing in it’s ferocity. My health continued to decline and my use of Sativex simply made dealing with this easier.

I fortuitously stumbled across a TED talk by Dr Terry Wahls in August 2013 and so much has changed in just 12 months. Not in my wildest dreams did I think I’d be able to stand straight and walk on beaches again. I did other things that week that would otherwise have been impossible including a visit to Hadrian’s Wall and a few historic National Trust properties. I felt amazing despite hauling myself up steps and hillsides with crutches. Anything hard work always appeals to me. I intend to rock climb again next year. After being dark for a decade, the future is now bright again.

The laws regarding cannabis have featured in the media again recently. Thanks to the Wahls Protocol, I have the strength to stand up for this issue again. Yesterday I had a journalist from The Times newspaper visit. They were looking for a middle class cannabis grower who also uses Sativex. As this was happening a team was erecting scaffolding for the instillation of solar panels. We may be dirt bags with a battered old house but it did confirm our middle class status perfectly. My grow room was photographed even though my plants were struggling to grow well. This proved my argument that the sick should never be expected to grow their own medicine.

Despite using Sativex, my health also improves from using medicinal benefits found in other cannabis varieties. I’ve always argued that Sativex has too much THC for me so I try to change the ratio of cannabinoids to enable easier driving and balance. I’ve recently started to use a hemp oil purchased on Amazon containing only Cannabidiol. It’s legal and very effective. It has steadied my vision, stopped my knuckles aching and strengthened muscles and joints. Sativex is an amazing medicine but it can’t fix everything for everyone. It has made exercise much easier and allowed me to improve my health in that way. The body always responds well to exercise if a patient has the means to do so.

Thanks to the Wahls Protocol I can walk on beaches again.

Thanks to the Wahls Protocol I can walk on beaches again.

Wahls Protocol/Stair/KettleBell

Image

I’ve not posted in a long time. I’m not sorry for you, the reader, but only for myself as I try and figure out how the Wahls Protocol fits in with my current lifestyle. For nearly 4 months, I’ve suffered a series of colds which effected my appetite badly. Throughout this time, I’ve kept a healthy diet. I just didn’t have the appetite to eat enough of it.

 

I got a cold in February that seems to have stayed with me until now. A stiff neck and nausea went with it. I wasn’t a happy bunny, as you can imagine. However, I never broke my diet once. In fact, I spent the time getting over certain pangs and seriously tightened things up. I was plagued by my sweet tooth but that seems to have waned nicely. My weekly Paleo hot chocolates are now a rare treat. I don’t crave sweet things any more. I know what’s good for me.

 

I have been absolutely crap at keeping a food/mood/supplement diary. However, I can’t work so it’s been easy to keep track of what and how much I’ve eaten.  In addition to this, I’ve been staying calm. One of the first changes The Wahls Protocol diet brought about was vastly improved moods. I’m more patient, forgiving and calm. I literally don’t raise my voice on this diet. I don’t seem to be able to feel anger. Was there ever any use for it anyway?

 

Today’s breakfast was kidneys, a huge plateful of mixed green leaves with a large carrot on the side. Lunch was bacon, green leaves, some plum tomatoes, broccoli, a red pepper and a quarter of a purple cabbage. I’m told that dinner will be fish (Bass) and more mixed salad. I’m glad my appetite is back. Embracing the Wahls Protocol is suddenly a lot easier.

 

I’ve recently decided that coffee doesn’t suit me. Despite this, my husband is drinking Bullet Proof Coffee with organic, grassfed butter. I’m British and a tea drinker but this has not stopped me putting a few drops of MCT oil in it. I initially discovered Bullet Proof Coffee as I was looking for products to combat my fatigue. I occasionally watch London Real and both the coffee and MCT oil are regularly mentioned.

 

London Real – A weekly, one hour video podcast that challenges the status quo, explores the human experience, and exchanges ideas and perspectives with eclectic guests in one of the most exciting and diverse cities on the planet.

MCTs = MEDIUM CHAIN TRIGLYCERIDES

 

This is how my average day goes.

 

1. My daylight lamp is switched on by my bed. This is England, it’s overcast so any way to boost daylight is a must.

 

2. Breakfast with MCT oil in my tea and vitamin supplements on the side.

 

3. Check my cannabis plants, both indoors and out. A daily joy.

 

4. A 1 kilometre walk using crutches or 20 minutes using a pedal exerciser if it’s raining.

 

5. A session on an Inada Cube which is a Shiatsu massage chair.

 

6. Weight lifting using a KettleBell. I do 10+ repetitions on each arm, lifting the weight from the floor to above my head each time. It’s a great workout that I’m working on increasing with time.

 

I stretch all the time, I always have, especially when I’m on the stairs. Oh, I now go upstairs 2 stairs at a time. I’m short, only 5ft tall or 1.5 meters and walking upstairs 2 stairs at a time is a great regular workout.

 

The Wahls Protocol recommends that I work my brain. I’m no good with those brain training games. I’ve decided to learn to speak French and how to play chess instead. I’m historically unacademic, crap at most things including languages and maths etc. I’d probably have been diagnosed with ADHD in todays world. I am, however, good at sports, spacial awareness and growing cannabis.

Can there be meaning in pointless torment?

Found this TED talk valuable.

ideas.ted.com

“We cannot bear a pointless torment.” As is often the case with writer Andrew Solomon, you want to write down everything he says and think every sentence over for an hour, day, week. When Solomon delivers this line in his talk on forging meaning in our lives, he’s referring to a woman he interviewed for his book Far from the Tree, who experienced a rape that gave her a daughter — as well as a purpose. Through her adversity she was able to make meaning and find her identity. Solomon quotes her: “As it turns out, I’m the lucky one.”

But what about when that torment is without purpose? In March 2014, right before Solomon gave his TED Talk, the New Yorker published his profile of Peter Lanza, the father of Adam Lanza, the young man who shot and killed twenty students and six adult staffers at Sandy Hook Elementary School…

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Avenues And Alleyways

Cannabis Leaf & Extraction

Cannabis Leaf & Extraction

I’m dizzy today. Had a cold, got PMS and have done some walking and balancing exercises lately.

I think I’ll stay indoors today. 🙂 I have popped a 200mg dose of Modafinil to make sure I’m awake enough to type this. The British National Health Service don’t recommend it. I researched it though. I order it over the internet. I wish my doctor could prescribe it. She does know my use of it. She understands.

It’s been just over 6 months since I changed my life using The Wahls Protocol and I feel fabulous. A local pharmacist remarked on how well I looked. She was impressed and jotted down info on Dr Terry Wahls. It seems her daughter has Celiac Disease and is one of those people that struggles with keeping a healthier diet.

What means the most? Attending your child’s sports day and giving essential support or that very tempting Danish Pastry? There’s no contest or there shouldn’t be. We call it comfort food, even though the comfort only lasts a couple of minutes, if that. You smile and laugh with your friends, get a bit fatter, more tired and ultimately, fucking unhealthier. And you payed good money for it? Genius. Time for a change in attitude, don’t you think?

I don’t have kids. What drives me is the joy of being able to walk my dogs again. It’s more than enough incentive. The fields and woods are 5 minutes walk away.

Domino having a great time!

Domino having a great time!

Stan in Wales

Stan in Wales

I started the new diet at the end of August 2013 and had comprehensive blood tests just 3 months later. Previously, results had not been good but my doctor was stunned and amazed, announcing that I’d made quite an achievement.

Iron & Iron Binding – Normal

Serum vitamin D level – Normal

Full blood count – Normal

Lipid Profile – Normal

Haemoglobin – Normal

Serum cortisol level – Normal

Serum magnesium level – Normal

Vitamin B12 & Folate – Normal

For somebody that couldn’t even crawl 3 years ago, was so dizzy that I threw up several times per day, sweated nightly until my PJs were soaked, I feel kinda smug. And so I bloody should.

Not suffering too much pain these days, I’m finding that I use Sativex more for it’s anti-spasm properties. I’m just observing my vision steady after 2 extra sprays of the medicine. It’s quite remarkable. It has helped the past 6 months pass with ease. It provides me with less stiffness, dizziness, spasms and allows more energy to go out and exercise. I recover from the exercise more rapidly too. I’m happier and calmer, of course.

Do I think Medical Cannabis should be illegal? Certainly not. I much prefer having access to laboratory produced medicines though. The worlds population deserves the right to clean medicines and the hows and whys of Cannabinoids. Mind you, there are many patients suffering right now. Where the law allows, I can see no harm in sourcing clean Cannabis Oil. Find a qualified doctor and relieve yourself with my blessing. Get to know all the facts you can, and for chuffs sake, don’t just smoke it to treat your illness. You’re smarter than that. It needs to be absorbed or ingested to be medically effective.

Spring is here and health always improves with high pressure and sunshine. I walked a mile, in the woods, on both Saturday and Sunday. We even went to Growell Hydroponics on both days too. I’ve decided that I’m well enough to grow Cannabis again but I’m downsizing. I’ll be using a much smaller grow tent. It’s far less daunting and the plant pots are smaller and lighter. I’m finding that Sativex may be providing too much THC for me. I’ll experiment with Decarboxylation to address this and produce a few different tinctures. Sativex is speeding my recovery but leaves me feeling too stoned. I really need a permanent break from that.

Plants can not be patented. The Wahls Protocol and the Cannabis plant certainly have this in common. At least medical trials will prove their validity. Dr Terry Wahls is running medical trials on her protocol and I’ll be interested to see the results. I am already prescribed Sativex, a Cannabis tincture, and feel it’s benefits daily. Both medicines cause ‘epidemics of health’. It’s a shame that these things take time.

As I was choosing my new grow tent, this song was playing. I even got decent discount as a long term customer. It was a rather good weekend.

http://www.youtube.com/watch?v=mcfGeNqp-bY

You’ve been in my head now. I feel violated! 😮  🙂

Eat well, shit hard! No really, it’s an actual saying. From Catalan, I believe.